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The Chinese dad making medicine to treat his dying son

AFP, 25 Nov 2021
The only medicine that can help two-year-old Haoyang's rare genetic condition is not sold anywhere in China and closed borders due to the Covid-19 pandemic mean he cannot travel for treatment. Instead, his desperate father, Xu Wei, has set up a home laboratory to create a remedy for the boy himself. Haoyang has Menkes Syndrome, a genetic disorder that impacts how copper -- which is crucial for brain and nervous system development -- is processed in the body.

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